Forget Me Not

Thursday, December 17th, 2009

By Terri Carlson

Maryan with Elmo

Maryan with Elmo

I want to tell you about a very special little girl, Maryam. She was born in Iraq, with a deforming germ cell tumor on her face and because of her deformity, her father put her in a room, without food or water, to let her die. Her mother Rasha, a very brave young woman in a country where women have no say, took the child home to her family and tried to find medical help for the baby. When Maryam’s father learned of this he went to the hospital and tore up the baby’s birth records so Rasha could not take her out of the country.

Left with no alternative, and watching her child suffer and slowly die, Rasha brought Maryam to where U.S. Soldiers were stationed; asking for medical help. They made it possible for Rasha to seek help at The King Hussein Cancer Center in Jordan. The KHCC took great care of Maryam but if her life was to be saved she would have to receive medical treatment in the United States. However, her chance of survival was extremely poor and no hospital would risk taking her case. (more…)

Making a Difference

Thursday, December 17th, 2009

By Laurence M. Epstein, M.D.

Eileen Tye and Al-Juboori with Dr. Laurence Epstein

Eileen Tye and Al-Juboori with Dr. Laurence Epstein

Nadia Al-Azzawi, a 50 year old woman from Baghdad, suffered for 3 years with recurrent fevers, sweats and weight loss.  She was chronically ill, unable to work and trying to raise three children with no help. In 2003, she was having many black-out spells and a physician implanted a cardioverter defibrillator (ICD) in her chest to control her heartbeat. The device failed and was replaced 2 years later.  The implant site became red, swollen and tender, but the physician who placed the device had fled the country.  Ms. Al-Azzawi sought help at the local Shiite hospital and it is a sad fact that because she was Sunni, the hospital refused to treat her.

The infected pocket worsened and the device finally eroded through the skin. Finally, an ambulance driver cut the wire attaching the device to the heart, allowing the wire to retract into her body. For more than 2 years she lived with the chronically infected wire coiled inside her heart. Al-Azzawi was told to seek care in other countries, but the costs of travel and surgery were prohibitive; they could not afford it. “There was no one to help us”, said her husband, Moaiad Al-Juboori. “We saw her in pain, and we didn’t know what to do”. Through a friend, they connected with Simona Shuster of BWH International, and she took it from there, contacting The Ray Tye Medical Aid Foundation, which immediately agreed to cover this patient’s medical costs. (more…)

A Boy To Remember

Thursday, December 17th, 2009

By Eileen Tye

I recall being fascinated when I was a kid by the Reader’s Digest feature called “My Most Unforgettable Character” that appeared in every issue. It was always an inspirational description of someone living up to his potential, and I admit to meeting some real interesting people in those pages. As an adult I’ve known several “Most Unforgettable” people but only now have I met “My” most unforgettable character.

For security reasons I will not use his real name; let’s call him Mohammed. This case was brought to the attention of The Ray Tye Medical Aid Foundation by a nurse, who in working as an international public health consultant in Afghanistan came to know Mohammed and his story. Through her frequent communica-
tions, we learned the stunning details of the case and we embraced the urgency of finding treatment for Mohammed. This kind, caring nurse would become the boy’s Angel during the trying times he would face on his journey to find a new life. (more…)

THE JOURNEY OF ANNA WUSZTER

Sunday, September 20th, 2009

The Journey of Anna Wuszter

“WHAT YOU DON’T SEE IS HIDDEN UNDER THE SKIN AND IT MAY BE
MORE IMPORTANT THAN PHYSICAL BEAUTY.”

Thomas Overbury, circa 1613

As a little girl in Poland, Anna Wuszter could not have guessed nor imagined what life had in store for her as a young woman, yet the inconceivable happened. In the years when this beautiful, vibrant new mother should have been enjoying the merriment and amusing diversions of young adulthood, she was instead fighting for her life.

When Anna was 25 years old, she was diagnosed with a highly aggressive form of cancer known as sarcoma odontogenes mandibulae. The cancer had originated at the base of a tooth and quickly spread to her salivary glands, tongue and lower jaw. In three short months she was debilitated and in such extreme pain that not even morphine could relieve her suffering. Surgery, chemotherapy and radiation therapy finally brought the cancer itself under control but by then Anna had lost half of her face.

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Georgi’s Story

Sunday, September 20th, 2009

Georgi's Story

Bulgaria is worlds away if the life-saving medical care you need is in the United States. And even if you lived near that medical care but had no way to pay for it, it might as well be on the moon. Following is an example of how teamwork, dedication and perseverance led to success in treating a little boy whose life was in serious jeopardy.
Georgi Borisov - age 7 years

Georgi Borisov - age 7 years

THE TEAM THAT SAVED HIS LIFE

  • Guergana Barabonkova, a caring Bulgarian woman living in the Boston area
  • The Ray Tye Medical Aid Foundation
  • Fernanda Medeiros, International Health Services, Children’s Hospital
  • Heung Bae Kim, M.D.,Director of the Pediatric Transplant Center at Children’s Hospital

THE STORY

Georgi Borisov was born in the Southeastern region of Bulgaria about 270 km from Sofia, the capital. He was born prematurely with a rare and deadly condition, Short Bowel Syndrome, characterized by infected, herniated and dramatically shortened intestines. In fact, his bowel was too short to absorb enough nutrients to keep him healthy. In this situation, bacteria feast and multiply excessively causing further complications. A child with this condition can be kept alive for a time by intravenous feeding but in many cases this type of feeding can lead to serious ramifications including liver failure and ultimately, death.

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