ANNABELLE GREEN is afflicted with the rare and deadly disease, Sanfilippo Syndrome. The only hope for her survival was a risky stem cell transplant that was successfully performed at Duke University in North Carolina. The cost of her treatment was $200,000 which was paid for by the Foundation and we take great pride in reporting that Annabelle is doing far better than anticipated and she is expected to fully recover.
These are just a few of the cases The Foundation has funded
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For more information call Terri Carlson at (781) 356-4300
EFER QUIJANO has never been able to lead a normal life among other children because of a blood vessel malformation that has had severely deforming consequences for this handsome and charming young boy. The Foundaton will pay in excess of $100,000 for his ongoing treatment at Boston’s Children’s Hospital, which will take at least six months, followed by plastic surgery to normalize his appearance.
DIEUPHEL AZULPHAR had a rare type of aggressive tumor in his jaw that would have been deadly if not removed. In his native Haiti he had to walk for two days just to see a doctor who held out no hope for his condition. The Foundation made his surgery and jaw reconstruction possible with a grant of $47,000. He has been released from the New England Medical Center and is recovering beautifully.
JOSE JESMAN was shot in the mouth when he was 7 years old. This near-fatal injury left him with the inability to eat solid food or to speak. Pioneering surgeons at Mass Eye and Ear Infirmary undertook a delicate procedure to rebuild his mouth and jaw using bone from his own thigh. The Foundation paid $37,000 for the successful surgery and today Jose is able to enjoy normal food and a comfortable life among his peers. He has his first girlfriend.
SAMUEL TSEGAYE was born with a hole in his heart and was missing a heart valve. Without financial means to address his condition, he was destined to die. His successful surgery at Boston’s Children’s Hospital was paid for with a $50,000 grant from the Foundation. Samuel has completely regained his health and can look forward to a long and happy life.